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In Lost in the Crowd - Living with Trimethylaminuria, the author shares her deeply personal story of living with a rare genetic disorder that affects body odor. Trimethylaminuria, or TMAU, is an inherited metabolic disorder that affects an estimated 1 in 200,000 people. The condition causes an excess of trimethylamine (TMA) to be excreted in the sweat, breath, and urine of affected individuals, resulting in a strong fishy odor that can be incredibly isolating and stigmatizing.
Through her honest and candid storytelling, the author takes the reader on a journey of self-discovery, navigating the challenges of living with TMAU, finding her own path towards diagnosis and treatment, and ultimately coming to a place of acceptance and self-love. This inspiring and touching memoir is not only a testament to the resilience of the human spirit, but also sheds light on the often-misunderstood world of rare diseases and the individuals and families who are affected by them.
If you or someone you love is living with a rare disease or genetic disorder, or if you're simply looking for a powerful and uplifting story of overcoming adversity and finding hope, Lost in the Crowd - Living with Trimethylaminuria is a must-read.